Grandchild number 5 will be here tomorrow! Kyle Logan Graham. Im so excited but a little sad cause this one will prob, be my last! But can hold him an
d rock him now that the rest dont want to be held anymore! Wish us luck and prayers for Mommy and Baby all goes well! Love Shari!
Monday, November 9, 2009
I had a break through night! I slept 12 hrs, got up for meds only ONCE! and had 30 minutes of no movement when I woke up. I think its the extra Cymbalta is finally kicking in or I was exhausted. whatever I will take it! I hope tonight is this good! Yea me and the yea to the Drs!
Sunday, November 8, 2009
Im a a bad blogger! Ive been so busy at Drs and babysitting Ive neglected my duties. Shands was a nightmare! 7 hours of rigorous Psych. testing. Things my brain hasnt done in 40 yrs! When I left I went back to my room and shook for 5 hours. Kipp drove up from Orlando about 2 hrs away and took me out for dinner. He knew I would climb into bed and not eat! The next day was 2 hrs Psychiatric testing, not so bad, and now Im Fast Tracked . meaning the 3 Drs Neuro, Psych and Psychiatric will decide what is the best course. They specialise in Deep Brain Stimulation for Movement disorders on top of CD. By coincidence the Neurosurgeon Dr Foote was having a seminar in Orlando so we went and met him. He said he would put me on the Dec list. they only decide once a month. I am so ready I would go today! The pain is bad cause the Botox has worn off. I sleep all afternoon now.Its not so scary looking. you are awake the whole time and they talk to you. They implant a wire and then 2 wks later they implant the chargers in your chest and hook them up. If I can give birth to 2 babies with no drugs I can do this. Nov 17 is Botox day Yea! and we are having a new grandson on Nov 12th so there are still blessings in my life! wish my daughter luck, this is #3 for her! Kyle Logan Graham! Thanks for all the thoughts and prayers! I really need them, Im going to do this if I get the okay! Im too young to be this sick! I have grandbabies to see grow up! They are what keeps me going! Love Shari
Tuesday, October 6, 2009
Saturday, October 3, 2009
Had a good week! Sleeping better now that Dr has upped my Cymbalta ,I dont shake violently while Im awake. getting ready to go to Gainesville on Weds. they have a full service clinic and research hospital there. I hope its not just a meet and greet. Ive met everyone I have wanted, now get me better! They want all my records since birth..hahaha I told them all those Drs are dead! what are they thinking? So I got together what I could. Last 5 yrs, after that Dr has to go back to the storage closet! The Kipper and I went to HIS 40th reunion last night.Not Mine! It was fun. I stood the whole time, Im better standing so I lasted about 2 and a half hours. Not bad. Tonight is the big event, so we are just going to the cocktail party. I cant do a 4 hr dinner and dancing. Kipp Dance??? That will be the day. We had a blast at Terry's party at Margueritaville! We dressed her as the devil cause she is! and we went as black cats. Sara had a huge Devil cake and we passed it out to all the kids in the restaurant. There were quite a few Bdays there so we all sang together. They asked us to come back everynight cause we were the life of the party! we always are! The cutest little boy from Calgary Canada came to our table and said it was his Birthday too! Terry gave him her giant Balloon hat and we sang to him. he was 6! so precious, I doubt he will forget us! So life does go on! I only stop when I have to! Its hard to feel bad all the time but I am adjusting to it! Wish me luck in Gville, maybe they can give me more help! Have a great week, Fall is here! thats good enough for me!! Cya Shari
Friday, September 25, 2009
This was at our Fairy Princess party. Notice the tiara! Thats why its good to be Queen, and eat chocolate ganache cake! Lindsay liked this picture so she put it on for me! thats why Im the Queen, I get her to do things for me! Thanks Linz! check out my Facebook page for more silly photos of my friends! Shari Minter
Tuesday, September 22, 2009
Had a fairy birthday party last night we had a blast! We made Mo wear a Boa, a sash that said 60 fairy wings, glitter masks and a fairy hat! We all had raspberry Martini's and this fabulous Choc cake to die for! we are such dorks! Oh yes and we all wore our Tiaras! we laughed so hard that one of us tinkled, not me!!! The table next to us was having a party too so we all laughed together and gave the little girls the magic wands and masks. We held our wands together and each made a wish! What fun for old ladies! Today I had lunch with my old friend Jane, our kids grew up together and then she took me to the factory where they are building the Harry Potter set for Universal studios! cant wait for it to open! Maybe I can get a magic wand from Olivanders to cure my Dystonia! Got an appt at Shands , we will have lunh ach at the Swamp ,yummy, and make a day of it! busy day today! Moving forward. Bad day yesterday but better today. Maybe the answer is Raspberry Martini's! Im a genius! Wish good days for all the Dystonia rare disorder gang!