Guess what? No magic pill for me! I asked the Dr for a magic shot and he said Tequila! haha No improvement so in Nov I get stronger shots. he said I dont have classic Dystonia, there's something else going on so on to Gainesville to Shands Neuro for more research. I feel like a lab rat! "I need a Psychiatrist desperately! " well Duh dont we all! Hubby went in this time, I think he gets it that this is serious but he's a problem solver so he says we are finding a cure! just keep going til we get one! Nothing like an Alpha Male to take charge, I hope he finds me one! Dr said Miami has a good ctr also so maybe we will just travel the state! Today I hafta get crafty, BFF's have
another Bday on Monday. This time its a Fairy Princess party. Mo is 60! So I have lots of stuff to spray with glitter. Then other BFF is next weekend. Her party is a surprise in case she reads this. Lets just say she's the wild and crazy one! we will go with that theme! Today is also big football game Fla - Tennessee...Go Gators! Wearing my blue as Urban Meyer has instructed! So there's more to life than Dystonia! Gotta keep moving Never never never give Up! Winston Churchill! He's my inspiration! C Y'all after the game! Maybe I have some Tequila!

Been busy busy with all the babies! Gotta go back to the Neuro on Friday! Yuck, But Whatever! Maybe he will have a cure by Friday. A Magic pill or shot! Thats funny that you {Keke} and my sister are both Cancers. She is 6/27...so is my grandson . Birthday buddies! My husband and grandson and roomie in college are all cancers! How weird < I must call them to me to keep me from floating into outer space. Im a Leo. A bit spacy and always moving on to the next thing. Ideas floating out of my head at breakneck speed but cant ever get a project done. thats where my Virgo daughter and BFF come in. I just pass the ideas onto them and it gets done! How cool is that! My kids think Im bull headed... but not me! I just always want my own way! Is that a Leo thing? Old man hubby is used to it by now. 35 yrs in Nov. He better get me something good! he always does cause I drag his butt to the store and show him what I want. Works for me! This yr I want to go to London for Christmas, I dont know how much longer I can make that 10 hr trip. Could be my last one! Boo Hoo then London will have to come to me! I truly believe I lived there in my last life. Next life Im moving back! In fact I might leave tonight, laundry is all done passport is ready!what more do I need? clean undies....Cya Shari

I finally had a normal day yesterday! I felt good enough to go to the Mall and shop! Yeah I know they have missed me! No nap needed and then out for dinner! back to reality if only for a day! Today my sister had me over for lunch, yummy chicken salad and then we went thru old pics of people we dont know but hopefully we guessed right! People... please put the names and yrs of people in photos so your relatives know who they are! some of these were 100 yrs old and from Scotland and Canada. Its hard to place all the names together! Then I took old pics of us so her girls could laugh at pics of us in the 60's! Prom etc ...the dresses made them laugh. hey they were cool at the time. 10 ft long surfboards at the beach. hahaha!really cool bathing suits, remember when your Mom made you change in the car.. all naked and sandy, how embarrassing! Memory lane, old boyfriends who are all old men now, us too I guess! Hope for another good day tomorrow. I think my depression has subsided for a while. I hope so, back to life again! Shari

well I finally fell asleep for the 1st time in 2 days. In the car .not driving of course, head back mouth wide open. How attractive. came home and finished my nap thru Obama's healthcare speech. something I should be paying attn to. Is any one out there who can tell me how to sleep with this horrible disease? Up all night Tired all day, then finally crash. I love to sleep its my favorite thing in the world other than reading . hot tea and chocolate! Last week I feel asleep at the computer, legs hanging down and they fell asleep. couldnt walk when I woke up. such strange things happening!I think My husband and I are taking a ride up to Gainesville to see what their Neuro dept. says. worth the trip. They want me donate my brain but only if my grandkids get in.LOL I feel like an experiment here. try this... try that! My life has come to almost a complete halt. can only drive before taking any drugs, then Im worn out by 3 and have to be home to rest my neck. this truly sucks! I look at all the healthy little old ladies in their 70-80's and am sad cause that will never be me going on old people cruises. I just want my life back. Its just been 4 months and Im ready for the surgery! Buzz my head and do it now! I have to find the right surgeon though! That will make a big difference! LOL Shaky Shari

well Ive had a busy weekend! Got my "Welcome to Dystonia" packet...that ranks right up there with the AARP packet...Had 2 bad days over the weekend that freaked out my daughter. Ive been trying to protect them from the bad days. I guess I cant do that any longer. I do have bad days but try to keep moving and never give up. I have 2 new movements now...on top of no no no and the big pull... I have yes yes yes and the bouncing bobble head. Oh yes and the sprinkler head at night. what a combo ! I think I am seriously getting motion sickness from this. Anybody heard of that? Had a fabulous time at the BFF party, we had the restaurant laughing with us. Terry brought a full sized Austin Powers that said ...Oh Behave.. all night
she is so funny! and tomorrow is my youngest daughters 29th Bday so we just had a family party with all the grandkids. its was chaos as it should be ! 4 under 4 and another in 2months. Christmas will be wild! I have a lot to keep going for dont I? and all my friends are praying for me so I cant give up! can I? Keep me in your prayer I need them! Shari

Big girlfriend party tonight ! Hafta rest all afternoon to get thru but we laugh our pants off! I have a special surprise for them, we have been friends for so long. two of us for 23 yrs! Isnt that amazing in this time? Growing old together with all our trials and tribulations! women rock! Be there for each other! Weve had marriage problems ,divorces, financial problems and now me the health problem! We are stuck like glue! Maybe I will write them each a note to tell them what they mean to me, but they will all cry! plus they wont be able to read my handwriting .I hate to do it on the computer. I will have to translate, heck I cant even read my own!!! Love Peace and Laughter, what else is there???

Looking forward to a better day today. lotsa rest last night. still waiting for this Botox to kick in! Patience is my middle nam e! Thats a family joke! My Mom wanted to name me Patience, what a laugh that would have been as I have absolutely NONE! I am hoping Keke has a better day today too. The karma gods are on the case! Tomorrow night at the meeting of the Tiara society I will sick them on the the Evil Queen too! It will be our small contribution to eradicating evil in the world! Poisoned apples to them all!