tag:blogger.com,1999:blog-4901822109782832154.post3817391132192999579..comments2023-03-28T11:11:14.443-04:00Comments on Shari's Ramblings - A Dystonia Diary: Sharonhttp://www.blogger.com/profile/16794765158910844546noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-4901822109782832154.post-58273570431004460102009-09-10T00:41:07.189-04:002009-09-10T00:41:07.189-04:00Queeny, you are so funny!
1. Still haven't f...Queeny, you are so funny! <br />1. Still haven't figured out the sleep thing, except, I have been drinking chamomile tea at night about 2 cups and I sleep for 2 1/2 to 3 hours. I'll take that. Then I get up and have some more and sleep another couple...hmmm<br /><br />2. Night time head bobbing...remember, I think I told you about my friend Marion who's head goes backward? Her head bobs like crazy sometimes through the night but not every night, I don't think she's found anything that helps that yet...<br /><br />3. You will go on the old people cruises, have faith...<br /><br />4. I'm trying Niacin, read a google alert about someone who claims to have started taking it and has been in remission for 5 years, did a little research and it says it releases toxins from the body. Lined up with the other google alert that claimed that some CD is caused by certain toxins...all shots in the dark, better than what DR'S are giving me...so, faith... besides, what can it hurt?<br /><br />5. Calling Sacramento, even though my current nuero has helped me tremendously, last treatment when I tried to ask her about the toxin thing, other things I've read etc. she said, "I've told you, no known cause, no known cure." I like her but I can't have a doc that doesn't have faith, I'm a believer in miracles!!! Besides, how do you account for the other people who've gone into remission? Current Doc says it's rare and I shouldn't get my hopes up that way, I say, hope is all we have my friend, we should not go gently! <br /><br />P.S. About wanting your life back...take it back inch by inch...fight, what's that saying about acting it out until it's real, I know I'm not quoting correctly, but it's true! <br /><br />YOU CAN DO THIS!!! Be well...Kekehttps://www.blogger.com/profile/10158364152862185708noreply@blogger.com